Prospect to welcome brave cyclist
Prospect plans to greet a keen cyclist with an incurable form of prostate cancer who is on a 4,000-mile ride around the UK. And he plans to pass through Bristol soon. Kevin Baldwin, 61, who was told by doctors last year he had only five years of active life left, set off on the cycling challenge in aid of Cancer Research UK. He plans to raise Â£5,000. You can follow his trip via his Instagram @compass4cancer. More details soon.
AGM re-elects officers
The AGM heard a talk on the role of exercise in cancer recovery and then re-elected the officers and committee with the addition of Jeff Allen. A YouTubeÂ recording of the talk is available here . The next coffee morning is on June 9 as it’s a bank holiday on 2nd. It’s from 10am-noon at Penny Brohn centre, Chapel Pill Lane, Pill, BS20 0HH. Need a lift to the event? We arrange pick-up points close to a bus stop near you. Email details to email@example.com a few days in advance. Lifts will usually be timed to arrive at Penny Brohn at 10am unless the driver agrees to another time.
If youâ€™d like to receive our newsletter and details of our group email firstname.lastname@example.org with your postal address and we will send you an information pack.
The annual docks walk will be on June 17. Contact Ken Head at email@example.com or on 0117 929 3156 to reserve a place. Meet at The Cottage pub 10am.
Secretary Martin Webb has arranged a visit to the Botanic Garden, Bristol, on May 20. All members, friends and partners are welcome. Meet at the Garden on Stoke Park Road, BS9 1JG at 10.30, have a two-hour tour and then refreshments on the West Terrace. To book contact firstname.lastname@example.org or phone 01179 445669 (home), 07747 437636 (mob). The garden website is here. And there will be another walk, at Ashton Court, on Oct 7.
Urine bugs ‘a sign of aggressive PCa’
Scientists say they have identified urine bacteria which are linked to aggressive PCa. The discovery might provide new ways to spot and even prevent these dangerous tumours, experts hope. See moreÂ And scientists have hypothesised that if they found a way to get zinc into malignant cells that might be helpful. More here
PCa growth discovery
A research team at MedUni Vienna has now discovered specific changes in a protein that drive the growth and spread of PCa. See more here
Fast blood test for cancer tested
A new PinPoint blood test being tested could rule out cancer for 500,000 people a year, with the results back from the NHS within just two or three days (Mar ’22). More here
New test cuts false positives
Men could be screened for PCa using a new blood test which significantly reduces the number of distressing false positives, according to new research. A UCL scientist found that by using tests that look for two different warning signs together, instead of just one, it was possible to better identify those with the disease (Mar â€™22). See more here
Talk on YouTube
THE talk we had by Sarah Gray of Tackle has been put on YouTube here
Sex survey went wrong
Prostate Cancer UK has apologised after inviting men to take part in an anonymous survey to help improve sexual care for PCa patients. The email it sent linked to a preview of the survey instead of the live one. So it wasnâ€™t able to capture any responses submitted. Another chance to take part is offered via this link
New drug ‘prolongs life’
A breakthrough triple therapy for advanced PCa can give patients years more healthy life and reduces the overall risk of death by a third. The regime involves two standard therapies alongside a powerful new hormone medication, darolutamide (Mar ’22). More here
Black men sought for study
Participants aged 18+ wanted to examine how Black men use recorded music/song choices to process the impact of their PCa. The study also seeks to enable the future development of culturally appropriate peer support groups for psychosocial help using music. Tackle Director Alphonso Archer, a music therapy master’s student at the UWE, will conduct the research online. This should take about 60-90 minutes to complete in the form of a semi-structured interview. To find out more and to participate go here, And In partnership with Movember, Prostate Cancer UK is funding a studyÂ to help find out why black men are at higher risk of PCa than other ethnic groups. More here
Help with treatment decisions
Prostate Cancer Research is launching a new website to empower people living with PCa to make better treatment decisions. You can sign up to share your experiences on The Infopool when it launches later this year (Feb â€™22). Sign up here And the Predict Prostate web tool helps you make decisions about PCa treatment.
Search on for 14,000 untreated men
A hunt is on for 14,000 men who itâ€™s estimated havenâ€™t started PCa treatment due to the pandemic (Feb ’22). Men are asked to answer three quick questions at this risk checker:
New test spots aggressive cancers
A new test can spot which prostate cancers are most deadly (Feb ’22). More here
Exercises ‘a boon’
Any cancer diagnosis is a major challenge. While waiting for treatment we can improve our readiness by getting fitter. Any improvement speeds recovery. Recovery after treatment is both psychological and physical. Exercise helps both. When it takes place in a friendly group of people each facing their own cancer journeys the benefits multiply. For me, the Energise programme has been one of the best things I have done to help my recovery. It is a personalised exercise programme designed by specialists for you. It starts from where you are. You do not need to be a fitness fanatic or have any previous experience. It really is designed for helping you to start from your level of fitness – or unfitness â€“ and support you through whatever challenges you face. I attend the classes at Everyone Active Stadium, Clevedon, where more people will be very welcome. There are also classes in Bristol. Tim Bond, chairman.Â Apply here. More info available from Alistair MacFarlane at email@example.com
Statins and PCa
Studies have found that men taking statins are less likely to have PCa in routine screenings. Another found that statin users were less likely to die from PCa (Feb â€™22). See more here
Pioneering new treatment
Nanoknife surgery was used to treat NHS PCa patients for the first time in January in London. MRI positions electrodes precisely around the tumour, and a series of short electric pulses kill off cancer cells. Healthy cells are not damaged, reducing the risk of side effects and many patients recover more quickly. Nanoknife can also be carried out as a day surgery, reducing pressure on the NHS. More here
Don’t delay cancer checks!
The public are being urged not to put off seeking help for worrying cancer symptoms because of NHS pressures. See more here
Join registry for info
PCa Research are seeking men to join a first-of-its-kind registry. It would revolutionise PCaÂ diagnosis, treatment and care by putting real people at the centre of it all. But joining would not only benefit others. You would also be able to access more relevant information about your treatment and care, be kept informed about the most relevant clinical trials you are eligible for, and provide critical evidence to speed up and shape vital research. Sign up here
Writing as therapy
Discover the therapeutic benefits of creative writing in a safe, supported group. No previous writing experience needed. Referrals on to the Fresh Arts Creative Writing for Wellbeing programme are being accepted by North Bristol NHS Trust, with new programme as follows: The meetings are all 10-noon on Thursdays: June 16-July 21; September 14â€“October 20; January 5â€“February 9 2023. To find out more and book a place email firstname.lastname@example.org; visit NGS Macmillan Wellbeing Centre Reception; or call Donna Baber, Fresh Arts Manager, on 07554 334 828.
A project has been launched to initiate positive change for those affected by bladder and bowel conditions (Nov ’21). See more and register here
Nutrition and prostate cancer
A video of the Prostate Cancer Research webinar session on this subject is available here A copy of the presentation is available hereÂ For more information or how to contact the presenters visit here
Good news for advanced patients
Apalutamide has been approved, Prostate Cancer UK reports. It means hormone treatment willl now be offered to those with advanced PCa who cannnot or should not receive chemotherapy as well as those who have become resistant to tranditional hormone therapies (Sept â€™21).
Memorial to tour UK
You can add a loved-one’s name to a Prostate Cancer UK memorial that is touring the UK. See how here
Enzalutamide (Xtandi) approved
Important news from NICE for the 4,100 men each year who are unsuitable for the standard treatment of docetaxel chemotherapy and who have, until now, had limited treatment options (June â€™21).â€¯ More here:
New vaccine â€˜could prevent PCaâ€™
Bad news re Olaparib
Olaparib has given new hope to men with incurable PCa, says the Daily Mail in this article. But in January NICE said it intends to reject olaparib for men in England, Wales and Northern Ireland, just months after it was approved in Scotland. See more here
Big change in PCa diagnosis
The biggest diagnostic development in PCa diagnosis for 50 years – that came about when NICE advised that all men at risk of PCa should have an MRI before a biopsy. The change has had a worldwide effect. See more here